At only 20 months old, Roman has been through more than what almost any adult will experience in a lifetime, but that doesn’t stop him from smiling. He was born with a very rare tumor called a mesenchymal chest wall hamartoma. During the surgery to resect the tumor, the doctors also had to remove several ribs that caused roman to have Thoracic Insufficiency Syndrome. Children with this condition cannot support normal breathing or lung growth. As a result, their chest wall becomes deformed and the child must rely on nasal oxygen or ventilator support to breathe. Roman is a happy boy who has had to endure 9 surgeries in such a short period of time. He is a ventilator dependent child with a g-tube. He has had his chest wall rebuilt with vertical expandable prosthetic titanium ribs (VEPTR) and he will have to undergo surgeries every three to four months up until he stops growing as a young adult.
t’s very difficult after each surgery because there is usually another complication he must overcome. We hope for Roman to have a happy life and have the things that most children experience—going to school, playing with friends, and not having to worry about his medical needs. Please help us to raise funds for this wonderfull little boy and his family.